I’m Sevi. This is my story.
My name is Sevi. I am from Greece and I was born in Aug. 1992. I was diagnosed with Gaucher, type 1, in 2013. When I was born I had …
Feature: With A Warrior’s Heart, 2-Year-Old Ridgefield Boy Fights Rare Disease
Read more about Luke’s story Written by Tom Renner, Ridgefield Daily Voice: RIDGEFIELD, Conn. — Meg and Drew Whitbeck of Ridgefield reacted differently when they learned in February that their …
I’m Basil. This Is My Story.
I was born in South Africa on October 27, 1941 in a town called Benoni close to Johannesburg. One fine day I was at work and had walked to the factory …
I’m Landon. This Is My Story.
My name is Landon. I was born in Aug. 2014. When I was around 4 months old I kept getting sick. My doctor said it was just allergies,cold,bronchitis,etc. Around 7 …
I’m Yeyberth. This Is My Story.
I was only 5 years old when a doctor from J.M de Los Rios in Caracas, Venezuela discovered I had Gaucher type 1. I was always sick, had nose bleeds, …
I’m Marc. This Is My Story.
I am 36 years old and a family law attorney living in Orange County, California. My story is probably unique in the Gaucher community. I grew up relatively symptom free. …
I’m Leanna. This Is My Story.
My name is Leanna Mullen. I am a TV Station Manager at EHT-TV in Egg Harbor, New Jersey. I am 27 years old and currently studying for a Master’s in …
I’m Kristin. This Is My Story.
I am 44 years old and I was diagnosed with Gaucher Disease at age 5. The doctor felt that my spleen was enlarged and as I was growing up, as …
I’m Kevin. This Is My Story.
I was diagnosed with Gaucher’s disease back in 1975 when I was 4 years old. During a routine visit to my pediatrician she noticed an overly enlarged lymph gland in …
I’m Jenni. This Is My Story.
My name is Jenni Blustein and I have Gaucher Disease. I had just moved to Chicago from Detroit in 1995 at the age of 29. One day, while I was …