My name is Landon. I was born in Aug. 2014. When I was around 4 months old I kept getting sick. My doctor said it was just allergies,cold,bronchitis,etc. Around 7 months old I got really sick and went to the doctor. I saw a different dr that day and he said to rush me to the hospital that was 2 hours away because they were better equipped.
My body temperature was 92.7. I was very congested and my liver and spleen were huge. Before we left, the dr got my regular dr and reprimanded her about missing everything that was going on. I also had retroflexion and she said it was bad posture. We went to Memorial Health Hospital in Savannah, GA. I had all kinds of drs come in and check and in May of 2015 they found out I had Type 2 Gaucher Disease They started me on Cerezyme treatments in June.
I had to go every week to get infusions. I got my 1st port, a cath, on the 1st treatment. In August I had a gtube put in because I was only 14 pouds. In October I got a yeast infection of the blood from the port and lost a pound in 24 hours. I stayed in the Hospital for 3 weeks getting treatments for it and had the port taken out.
In November I had another port put in, was holding weight at 14 pounds and was steady getting aspiration pneumonia. In December I quit breathing and had to be air flighted to Hospital and was on a vent for a few days. My mom had to fight with drs to get me trached. She won. I finally got my trach on January 11, 2016.
Since I got my trach I haven’t had pneumonia and I weigh 23 pounds. My retroflexion is also gone. I haven’t been in the Hospital in over 3 months now. I am now 21 months old and still fighting!!!
-Melissa Clark; Hortense, GA