It was an amazing opportunity to be able to sit down with Rare Disease Report to talk about my experience with Gaucher Disease, as well as to be recognized as the founder of Gaucher Stories. Though my platform is small right now, I will continue to use it to spread awareness because the more people know about it, the less misdiagnosis we will have.
See some clips of my interview on Rare Disease Report’s website.
See all of the clips from my interview on the Rare Disease Report Youtube page.
