Emma’s Garden: Growing with Gaucheris one family’s global journey with Gaucher disease. The 10 minute digital story was launched by the National Gaucher Foundation of Canada, in 2013, at the Lysosomal Disease Network WORLD Symposium.
Emma’s Garden was produced by Emma Rooney and illustrated by Megan Rooney. Emma lives with type 1 Gaucher disease and she prepared her digital story as a gift to her family and all the incredible people who have contributed to her growth and well-being.
“I hope that telling my story, about living with a rare condition, will encourage more people to do the same.”
-Emma Rooney; Rare disease advocate living in Europe
For more information visit My Normal | storytelling for rare disease health.